So yesterday was another day of doc's calling me. They all, including me, have more anwsers. Brook was diagnosed with reflux at a few months old. Allllll this time we all thought she wasn't sleeping b/c of this reflux. That is only a part of it. It's her ability to grow these gianormous sized tonsils as well. The swallow study guy, Steve, called yesterday and spent along time on the phone with me and he explained everything to me in ENGLISH. No doctor lingo ;) They all, all her doctors, have decided this is a mandatory surgery. It will save her life. When you have heart problems, sleep apena is the worstest thing. So I sit and wait for the ENT office to call. Today or Monday. They will schedual the pre-op appt. I will make sure to tell them, might even bring a note from Jody, her blood draw nurse, about how very difficult it is to get some blood from this kid. Almost impossible. If they are able to get some blood i'm going to beg them to do a CBC and Thyroid test too. It's been awhile b/c Jody will only stick Brook twice and then she is done. Hopefully they will consider.
My mommy will come with hubby and me to the hospital. I have to call the other gramma today and tell her her first and only grandaughter will be in the hospital having surgery. Not a fun thing for me. I will make it sound like no big deal b/c I surely don't want her to jump on a plane from Penn just to fly out for this. I mean she surely can if she wants to but that is alot of $$ to spend on a ticket when not a one of us has any money. Ya know?!!
So this is coming.....fast. We will prevail. Brook will flourish after this is done. She will have all her words and more words b/c she will actually hear the words correctly. (Thats what the tubes will do.) I am thinking nothing but this!!!! I have to or I think i'd loose my cott'n pick'n mind...LOL
1 comment:
I am praying all is well with the surgery!! I cant wait until it is over. She will fly with her language skills to, I am believing with you.
In my prayers,
Stacy
Post a Comment