I'm just going to copy/paste this from Uno b/c i'm SOOO tired I can barely see. See post I'll never sleep again. Soooo tired. I also locked my keys in the car at Vicky and Barry's house BUT I LOVEEEEE my new vaccume :) I'll post a review someday... see i'm delerious...LOL
********************************************************
Dr Tami said they all talked for just under an hour. (I promise to keep this short ) ...................................April fools...LOLOLOL
After review of everyones entire file:
(and I mean everyone from the dentist to her heart doctor. Kinda like a IMP meeting ~Indavidual medical plan~LOLOL ... I am sooooo tired)
*Brook has had sleep apena all her life. Why wasn't a sleep study done before? Don't know?
*Brook has been "growing" these monster sized tonsils for over a year!!!! That along with the Laringotracheamalasia is not so good. Ohhhhh yea i'm a little preterbed this is THE FIRST I"M hearing this.
*Brook quits breathing anywhere from 3 - 7 seconds everytime she has this apena just about every 7 minutes.
*Remember when Brook had pulminalry hypertension (sp)? Ummm not really. I was in another hosp remember. Zonked for 4 days. Hubby has never told me of those first 5-6 days of Brooks life yet. Someday he will. I guess this is not good but again, haven't heard that word in all the days of Dr's...
*Remember Brook was born with and still not 100% cleared for her ASD and PDA. We were cleared to hang out till 2010. Thats next year right?! I remember THAT kind of stuff........sheesh
AND HERE ARE THE TWO REALLLLL GOOD ONES
* Brook needs this surgery to save her life
* Brook may loose the ability to say some sounds, or, and she said she will be totally honest with me, she said there might be a chance she will loose alot of her words, could be just for awhile while her throat gets stronger or ..... I stoped listining here.... and she's hopeful and then we could get ST What a smarty butt....Yes she knows the whole ST story...LOL For those that don't know i've been buggin' ESD to help me with her ST but no go, I digress...
So there it is. Brook will go on the 10th and set up the appt. I had a talk with the entire family tonight and told them all this stuff. I will do whatever it takes to save this girl. She saved my life and so now i'll save hers. She will be fine. Mom will be fine. Dad, well who knows Mary that stinker says " Mom Brook survived life support this is nothing. Plus if she never talkes again she's the awesomest (is that still a word?LOL) signer ever" I love my kids
No comments:
Post a Comment