Happiest of New Years Dear Friends!!! {{{{{{{{{{{{HUGS}}}}}}}}}}}}}
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We're back from the lung doc/sleep apena doc on Thursday. 3 hours we were there. He's so cool he gives out gifts and explained every little thing to me.
Brook picked a firetruck.........
....the doctor picked Asthma.........WITW?*
He did a major workup on the kid. He studied her x-rays, sleep study video, all the charts and came up w/ asthma.
Just great!
So now we have yet another medicine, not covered by insurance mind you... WITW?*... to give the poor girl. Her med schedual is getting quiet consuming.
I love her more than life itself {{{HUGS}}}
I should not complain, it could be worse I know but this breathing thing w/ Brooker is just not cool!!
NOT FRIGGIN" COOL!!!!!
Scares me to death. I've already been there, not breathing.
Never again!!!!!!!!!!!!! I do not sleep much.
When I beggggged and beggggged for xrays for yeaaaaars.........
No, she's fine. It's the malasia noise. Blahhhhhh......... (could be, BUT made WORSE by Asthma)
Damn!!
He listed it like so:
Ds airways (small)
Low muscle tone
Both malasias
Reflux
Apena
Asthma
"Not such a good combo Mrs. Mom", he says.
No kidding!!
He says this malasia noise has not gone away b/c the kid has asthma. Her floppy malasia throat makes it already hard to breathe for her. Add some asthma to the mix which inflames all her little airways and inflames the floppy throat, makes for some apena and this constant noise.
Arghhhhh......
I bow to the hubby who called it on this one. You were right and I love you. I will listen to YOU better next time XOXOXOXOXO{{{{HUGS}}}}}
We now will go see the CPAP guy for our fitting. He wants her to play w/ it for a month or so and get her to not freek out. Then we will go back to the sleep study place and get it hooked up to the right settings.
Of corse this new med has to be in granuals so it has to be ordered in. He wants to give it a week and maybe that could do the trick w/o CPAP but not likely he says. Giving it a try. It will hopefully decrease the inflamation and hence maybe more air. He stressed the importance of getting into see Dr Pinter (we're schedualed) and getting some ST from ESD for Brook for muscle building techniques.
HA!! We all know how that will go. *Bitter Momma*
So, thats all I know. Thanks for caring about my little Brookster. I'm going to go pout now.... and continue to monitor this breathing......................
Don't worry, tomorrow is right around the corner......smiles :)
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*what in the world
*those who have read here for a bit know that Brook has NEVER recieved formal ST through ESD. End of subject here ;)
2 comments:
I'm pretty sure we have a light case of Asthma here too, diagnosed by Mama, free of charge. We'll be talking to the doctor soon, because he will have to give her another inhaler. Those small airways make everything sound worse. I think it might be the main reason they can't keep her in school when she has a sniffle. I'm not sure what ST thru ESD is, but I'm pretty sure we have never had it either. No one has ever been forth coming on any program in the state of Oregon. At age 6, we finally might get some respite, just when she's in school and growing up to the point where I am not stressed 100% of the time. Oh well, this might mean that we can go see a movie!
Oh that sounds hard. I know how you feel, we have breathing issues here and they seem to be getting worse so we will be doing a sleep studay and all of that. Wysdom is similar to Brook. I heard her breathing on one of your videos. I never would have thought of asthma. Good luck with the cpap. We keep Wysdom in our room just so we can monitor his breathing. Sending hugs.
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