Monday, October 19, 2009
Why does your clock tick?
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If you watch the above video for the ENT (Sleep study schedualing and ENT check tomorrow) you will hear my trusty ticker in the background. I was watching the video and it reminded me of all the times i've heard these phrases:
How can you stand that tick, tick, tick? Oh thats going to drive you bonkers! Can you please take it in the other room, football is on. Mom, I can't sleep!
Oh i've heard them all ;)
Don't care, but i've heard them....LOL
When Brook was very first born, she was on life support. She would just stop breathing. For just a few seconds (maybe 3-4) but all of those seconds added up in an hour, was alot. She pulled through w/ the help of her Daddy in those first few days.
I was the one holding Brook when this had been discovered. She was two hours old and I was cuddling my precious, much prayed for, little girl. Her feet turned PURPLE, a color I now don't like so much. I called for the nurse. When I saw her again, two hours later, she was on life support, being taken an hour away in the panda van, to the house on the Hill.
I did not see her for four days.
When I saw her, I bawled. She was the biggest baby there. She weighed 8 lbs some odd oz. She was off the life support and just on oxygen and some room air by then. Praise God. She wasn't eating or holding her temp or remembering to breathe all the time and covered in wires, BUT she was pink. A beautiful shade of pink.
We had a talk, that Brookster and I.
She came home two and a half days later, eating from the smallest bottle i'd ever seen and doing so every.hour.on.the.hour.for.months!! I love her. I'd set three, yes three, cell phone alarms so I would get up. Sooo tired.
One day I noticed she would gasp for air while sleeping. Gag, throw her chest back, and sometimes barf all over (reflux) If she happened to reflux, she would choke. Her little arms and legs would stiffen out and she was clearly gasping for air. I'd tap her on her bottom and she would breathe "normally" again. She slept in a special bed that I made all comffy w/ the head elevated, in my bed of corse, she wasn't going more than 10 feet from me, ever aagin. (holds true to this day ;) ) Exception: School ...LOL It's only 2 blocks..HHAHahahahahaaa I can see it from the front porch.
Long story short, almost three years later and many doctors later, we had a big giant word like Laryngotracheomalasia. and another word, sleep apena.
I would stay awake w/ a nightlight on trying to see the clock to count the seconds before i'd have to pick Brook up and tap her on the bottom, she'd forgoten to breathe again. That sucked. I searched Ebay for a clock that ticked. Just so happens I found one w/ a Steelers logo on it. Hubby likes that part LOL. I needed it so I could not pay attention to watching the clock, counting seconds, I could watch for the *signs* the doc always talks about, when to call 911 ya know, and I somehow trained my brain *no laughing* to count the ticks, and remember them. (I keep a breathing, or maybe it should be a not breathing, journal)
*&(^^%#$%$*^*()&%$ &^%%^#$%)((_)*%$@#$% ^&%#@5150&%$%##&
Yep!
We schedualed a tonsil and adnoid (T & A) surgery. hoping that would help. Come to find out, the adnoids were quite small, the obstruction was these gianormous tonsils, so the adnoids stayed.
Today, this week, things are back to me listining to my trusty ticking clock. Brook has been having major stridor retracting episodes along w/ the flips and flops known as Sleep Apenea. Were back to sounding like this and Momma staying up to late watching for *the signs*, adjusting Brook back into her "upright" sleeping position and listing to my ticking clock. We go see the ENT tomorrow. {{{HUGS BROOKSTER}}}}}
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1 comment:
I think that I maybe having the same problem as you are. I am not quite sure as we haven't had any testing done yet. Wysdom does have a stridor. In the last week it has gotten bad, that I have to move him all night. I do the 12-4am shift and my husband does the 4-8am shift of wathcing him and moving him. I guess I have to get an appointment with someone. Hopefully everything goes well with Brook. Thanks for sharing this and informing me of what it maybe.
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