First order of buisness today is an apology. An apology for what your about to read. I try to keep Brook's blog all about fun times, excelent adventures, cute pic, etc. Rarely have I brought up something not so fun. I want new parents to run accross this blog and realize a child with Down syndrome has meaning, puropse and is to be celebrated and doesn't have to have all the medical things that could come up. Thats what I try to do but tonight i'm feeling a bit scared b/c a medical situation has come up. Although not as major as most, still non the less scary for this momma. So I need to just put it out there....
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I will never sleep again...........
Why you ask? Because I got some of the results from Brooks sleep study today. The girl stops breathing 9.6 times in an hour. Thats about every SEVEN MINUTES!!!!! I forgot to ask how long the episodes were or even her oxygen levels. That happens sometimes when I hear something I don't like, I forget what words came next. Hubby can attest to that...LOL
I'm scared for her. I never wanted anything to be wrong with The Brookster. She is perfect just the way she is. I could be ALOT worse I know. I do play internet alot, you read things. This is still very scary for me and me as the momma has every right to be piss my pants, have a panic attack, freek out momma, scared. I think it came in the handbook ;)
Brook also has to have her tonsils and partial adnoids removed. We don't know when yet. Appt is on the 10th to chat with the doc and I have ALOT of questions. Spent 1/2the day today signing release forms for every doctor she has ever seen. There's alot of different factors here but i'm too tired and don't want to bore you with dumb doctors words like.... pulminary hypertension, tracheamalasia, laringomalasia, cleft palate, gerd, reflux, nasil asperation/regurgation(sp)etc... Neet huh? *TOTAL SARCASM THERE* I can't even think anymore. It's an hour past my bed time. Brain going hay wire here....LOL
So that is why I just can't bring myself to sleep. I might get reallllllllllly tired later and doze off but i'll close my eyes and listen to Brooker breathe as I do every night. Tonight instead of being woke up b/c she is having trubbles breathing, i'll be here waiting to grab my girl, lay her on my chest, rub her back, stroke her hair and put her back to sleep.............. for what.... 7 minutes Aghhhhhhhhhh...
Do you know how much I love this kid?!?!?!?!!!!! How much would you love someone who saved your life?
No comments:
Post a Comment